On Monday 13 January 2025, Luxembourg's Ministry of Health and Social Security and the Luxembourg Institute of Health (LIH) presented the first results of the national Colive Cancer survey.
Since 2022, this national survey, conducted by the LIH in collaboration with the Ministry of Health and Social Security, has given cancer patients an opportunity to share their experiences and feelings. The project is part of the National Cancer Plan (PNC2) which aims to develop a patient-centred approach to care.
To date, 288 patients who have been treated for cancer in Luxembourg since 2020 have participated. The objective is to reach 500 testimonies to strengthen the representativeness of the data.
As reported by the authorities, the contributions make it possible to better identify the strengths and weaknesses of the care system, to shape personalised care and to improve the quality of life of patients.
The Colive Cancer study questionnaire covers the main themes defined by the PNC2 and the entire patient journey, from diagnosis to life after cancer, addressing key points such as treatment, care, the relationship with healthcare staff, prevention and patient satisfaction and quality of life.
The first results are based on the testimony of a group of 100 women, aged 50 on average, who have or have had breast cancer.
Patients gave an average score of 8/10 for the communication and support received during their diagnosis, reflecting an overall positive perception of care in Luxembourg. 80% of participants said they were satisfied with the information provided by their healthcare teams, although an increased need for explanations about side effects has been identified. In terms of additional support, psychologists were the first resource identified to more than 80% of patients, followed by physiotherapists and physical activity programmes, which the authorities said shows the need for a holistic approach to cancer care.
The main advice collected from patients through this survey was: "Trust your care team", "Stay positive", "Be wary of online information". Such advice was said to demonstrate the importance of the care team throughout the journey.
In order to strengthen these results and ensure that they represent the entire cancer population, Colive Cancer is continuing to recruit participants. Patients currently undergoing treatment or who have had cancer treatment since 2020 can visit colivecancer.lu and contribute to improving care.
